It’s taken me some time to make this post for a variety of reasons. On May 10th, my mother, the inspiration for this site, died in hospice. Even though technically you could say she died of respiratory failure, we know she died of ALS, and hospice was good enough to put ALS down as her cause of death. Some ALS deaths go unreported because doctors put cause of death down as a complication. Mom wanted ALS listed, and it is. She counts.
I hope to make some updates soon, as I’ve learned a lot in the last couple of months. Please be patient. I plan to keep fighting ALS but I need a little time to arrange my thoughts.
Thank you for your support the last couple of years.
Christy
