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	<title>ALSCaregiver.com</title>
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		<title>What&#8217;s upcoming</title>
		<link>http://alscaregiver.com/2009/07/whats-upcoming/</link>
		<comments>http://alscaregiver.com/2009/07/whats-upcoming/#comments</comments>
		<pubDate>Tue, 28 Jul 2009 00:06:59 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[The Book]]></category>
		<category><![CDATA[book]]></category>

		<guid isPermaLink="false">http://alscaregiver.com/?p=94</guid>
		<description><![CDATA[At the moment I&#8217;m working on putting together a long list of experiences in book form.  The book will be put up here for free chapter by chapter, in pdf form for free, and as a paperback book for those who want it offline.  Unfortunately I&#8217;ll have to charge for the physical book since they [...]]]></description>
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		<title>Martha Lindsay:  1949-2009</title>
		<link>http://alscaregiver.com/2009/06/martha-lindsay-1949-2009/</link>
		<comments>http://alscaregiver.com/2009/06/martha-lindsay-1949-2009/#comments</comments>
		<pubDate>Wed, 24 Jun 2009 00:46:14 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[als]]></category>
		<category><![CDATA[death]]></category>
		<category><![CDATA[died]]></category>
		<category><![CDATA[grief]]></category>
		<category><![CDATA[mom]]></category>

		<guid isPermaLink="false">http://alscaregiver.com/?p=92</guid>
		<description><![CDATA[It&#8217;s taken me some time to make this post for a variety of reasons.  On May 10th, my mother, the inspiration for this site, died in hospice.  Even though technically you could say she died of respiratory failure, we know she died of ALS, and hospice was good enough to put ALS down as her [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Wheelchair and scooter as social experiment</title>
		<link>http://alscaregiver.com/2009/03/wheelchair-and-scooter-as-social-experiment/</link>
		<comments>http://alscaregiver.com/2009/03/wheelchair-and-scooter-as-social-experiment/#comments</comments>
		<pubDate>Fri, 27 Mar 2009 23:29:59 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[experiment]]></category>
		<category><![CDATA[injury]]></category>
		<category><![CDATA[scooter]]></category>
		<category><![CDATA[social experiment]]></category>
		<category><![CDATA[wheelchair]]></category>

		<guid isPermaLink="false">http://alscaregiver.com/?p=89</guid>
		<description><![CDATA[I first came down with plantar fascitis in both feet (plus Achilles tendinitis in the right foot) in October of 2008.  I was in a wheelchair for a month and still haven&#8217;t gotten over it.  I can&#8217;t stand up for more than five minutes at a time, I can&#8217;t lift anything heavy and I can&#8217;t [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>New video lessons page</title>
		<link>http://alscaregiver.com/2009/02/new-video-lessons-page/</link>
		<comments>http://alscaregiver.com/2009/02/new-video-lessons-page/#comments</comments>
		<pubDate>Tue, 17 Feb 2009 16:32:32 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://alscaregiver.com/?p=85</guid>
		<description><![CDATA[I&#8217;ve added a page with video lessons for caregivers.  You can find a link at the top of every page and the left side of every page.  Hope you find it useful!
]]></description>
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		<title>New song for caregivers</title>
		<link>http://alscaregiver.com/2009/02/new-song-for-caregivers/</link>
		<comments>http://alscaregiver.com/2009/02/new-song-for-caregivers/#comments</comments>
		<pubDate>Fri, 06 Feb 2009 04:18:40 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://alscaregiver.com/?p=78</guid>
		<description><![CDATA[I wrote a song called &#8220;There&#8217;s No Place Else&#8221; for my mom, who most of you know has ALS (Lou Gehrig&#8217;s Disease).  After I wrote it several people said other caregivers would relate, so I posted it on the onewildchristy MySpace for anyone who wants to hear it.  It&#8217;s the first song in the player.
]]></description>
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		<title>For Caregivers of the Newly Diagnosed</title>
		<link>http://alscaregiver.com/2009/01/for-caregivers-of-the-newly-diagnosed/</link>
		<comments>http://alscaregiver.com/2009/01/for-caregivers-of-the-newly-diagnosed/#comments</comments>
		<pubDate>Tue, 13 Jan 2009 18:57:19 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[Emotional]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[als]]></category>
		<category><![CDATA[anger]]></category>
		<category><![CDATA[caregiver]]></category>
		<category><![CDATA[diagnosis]]></category>
		<category><![CDATA[disease]]></category>
		<category><![CDATA[distress]]></category>
		<category><![CDATA[emotions]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[illness]]></category>
		<category><![CDATA[stress]]></category>

		<guid isPermaLink="false">http://alscaregivers.com/?p=69</guid>
		<description><![CDATA[I&#8217;ve gotten several emails recently from visitors who are dealing with a brand new ALS diagnosis, so I thought I would write a little about what I went through at first.  I hope it&#8217;s helpful.
You should also see my previous blogs, especially Caring For The Caregiver.
If your loved one was just diagnosed with ALS, you&#8217;ve [...]]]></description>
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		<title>Two terrifying weeks</title>
		<link>http://alscaregiver.com/2008/12/two-terrifying-weeks/</link>
		<comments>http://alscaregiver.com/2008/12/two-terrifying-weeks/#comments</comments>
		<pubDate>Sun, 21 Dec 2008 23:20:08 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[Medical]]></category>
		<category><![CDATA[als]]></category>
		<category><![CDATA[dnr]]></category>
		<category><![CDATA[do not recusitate]]></category>
		<category><![CDATA[hospital]]></category>
		<category><![CDATA[icu]]></category>
		<category><![CDATA[intensive care]]></category>
		<category><![CDATA[lou gehrig]]></category>
		<category><![CDATA[martha]]></category>
		<category><![CDATA[mom]]></category>
		<category><![CDATA[sclerosis]]></category>

		<guid isPermaLink="false">http://alscaregivers.com/?p=67</guid>
		<description><![CDATA[I knew it would happen eventually but I wasn&#8217;t as prepared as I thought I&#8217;d be.
Mom, our friend Margie and my brother Shawn went to Branson a few weeks ago.  While they were picking up tickets, Mom felt that she needed a breathing treatment.  By the time they got to the hotel they had to [...]]]></description>
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		<title>A return to the BiPap</title>
		<link>http://alscaregiver.com/2008/12/a-return-to-the-bipap/</link>
		<comments>http://alscaregiver.com/2008/12/a-return-to-the-bipap/#comments</comments>
		<pubDate>Sun, 21 Dec 2008 23:05:11 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[Breathing]]></category>

		<guid isPermaLink="false">http://alscaregivers.com/?p=65</guid>
		<description><![CDATA[As an update, I&#8217;ll just say that mom has decided she can&#8217;t be without the BiPap.  While she does not want oxygen, she has realized that the BiPap helps her breathe without forcing in oxygen.  She hates it, but she&#8217;s working with it.  The truth is, we can&#8217;t risk being without it at all now, [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>The BiPAP experience ended</title>
		<link>http://alscaregiver.com/2008/10/the-bipap-experience-ended/</link>
		<comments>http://alscaregiver.com/2008/10/the-bipap-experience-ended/#comments</comments>
		<pubDate>Sun, 26 Oct 2008 01:47:44 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[Emotional]]></category>
		<category><![CDATA[als]]></category>
		<category><![CDATA[bipap]]></category>
		<category><![CDATA[breath]]></category>
		<category><![CDATA[breathe]]></category>
		<category><![CDATA[Breathing]]></category>
		<category><![CDATA[lou gehrig's disease]]></category>

		<guid isPermaLink="false">http://alscaregivers.wordpress.com/?p=62</guid>
		<description><![CDATA[An update to this post is at this link.
A while back I wrote about the BiPAP machine that mom got to help her breathe at night.  We finally found a mask that worked ok because the nose pieces weren&#8217;t working at all, but today she told me she isn&#8217;t going to use it.
My mother&#8217;s greatest [...]]]></description>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Injuries and new perspectives</title>
		<link>http://alscaregiver.com/2008/10/injuries-and-new-perspectives/</link>
		<comments>http://alscaregiver.com/2008/10/injuries-and-new-perspectives/#comments</comments>
		<pubDate>Sun, 26 Oct 2008 01:32:36 +0000</pubDate>
		<dc:creator>Tribal Dancer</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[als]]></category>
		<category><![CDATA[amyotrophic]]></category>
		<category><![CDATA[amytrophic]]></category>
		<category><![CDATA[chair]]></category>
		<category><![CDATA[disabled]]></category>
		<category><![CDATA[fascitis]]></category>
		<category><![CDATA[lou gehrig's disease]]></category>
		<category><![CDATA[manual]]></category>
		<category><![CDATA[motorized]]></category>
		<category><![CDATA[plantar]]></category>
		<category><![CDATA[tendonitis]]></category>
		<category><![CDATA[wheelchair]]></category>

		<guid isPermaLink="false">http://alscaregivers.wordpress.com/?p=60</guid>
		<description><![CDATA[It&#8217;s hard to describe the processes, thoughts and problems that can go on when someone finds herself in a motorized wheelchair.  It&#8217;s hard because we don&#8217;t go through it &#8211; the patient does.  While I can&#8217;t tell anyone that &#8220;things happen for a reason,&#8221; I do know that those happenings can be useful in the [...]]]></description>
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